CancerGuide: Specific Cancers, Problems, and Treatments
Brain Tumor Organizations
I especially recommend:
Brain Tumor Information Services
Call this number, and you will be in touch with a nurse who spends her life keeping up with the latest in brain tumor research, and telling patients about it.
The National Brain Tumor Society has quite a bit of basic information on brain tumors that'll help you get oriented.
Another organizations that has slick informational booklets, and newsletters is:
American Brain Tumor Association (ABTA)
One patient told me that this organization provided him with a list of applicable clinical trials, certainly a very valuable service! The ABTA Home Page has some valuable information, especially their primer of brain tumors.
Other Useful Websites
Brain Tumor Clinical Trial List
Al Musella's site for Clinical Trials and Noteworthy Treatments for Brain Tumors is diligently maintained and contains a wealth of information on brain tumor clinical trials (experimental treatments). Highly recommended!
Glioblastoma Database and Newsletter
The Glioblastoma Database and Newsletter (BrainLife.org) is a collection of references to the technical medical literature on all aspects of glioblastoma created by an Italian patient and another layperson (it's in English though!).
The strengths are that it's very current and includes good references on promising alternative therapies and current experimental treatments. The weakness is that it provides no commentary or explanations. This is an advanced resource - not a starting point. [Reviewed April 24, 2003]
Online Support: Brain Tumor Mailing List
There is a very good brain tumor mailing list:
Brain Tumor Discussion Mailing List:
This CancerGuide Page By Steve Dunn. © Steve Dunn
Page Created: 1996, Last Updated: September, 2010