CancerGuide: Specific Cancers, Problems, Treatments, and Situations

CancerGuide is more about how to research your options than it is about giving you specific information on your cancer - I couldn't hope to maintain that kind of information. So this article is links to good sites I've found about specific cancers and situations. I also have a few articles with pointers to a bit more.

The big exception is my extensive kidney cancer section where I review the treatment for the cancer I had in depth.

Steve's Information on Specific Cancers, Situations, and Treatments

Steve Dunn's Kidney Cancer Page
Over 40 articles on kidney cancer!
Some Advice on Dealing With a Rare Cancer
Find out about how to research it, special databases, second opinions, and more.
Getting Information on Brain Tumors
Pointers to information and support.
Prostate Cancer Resources
Pointers to information and support on and off the net.
Bone Marrow Transplant Information
Pointers to information and support.

Other Sites for Information on Specific Cancers

This is a highly selected list of websites devoted to specific cancers with in depth original information. Because I look for sites which go beyond the standard bland very basic patient information some very common cancers aren't represented here, simply because I haven't found an appropriate site. Incidentally, I've found the best sites are very often patient-created sites like this one.

Male and Female Reproductive System Cancers

National Ovarian Cancer Association
Truly outstanding resource - all the latest technical information!
National Ovarian Cancer Coalition
Chris Brewer's Testicular Cancer Page

Common Solid Tumors

Alliance for Lung Cancer Advocacy, Support and Education
Some excellent basic information - be sure to check out their Lung Cancer Manual!
Lung Cancer On-Line
While this page by a librarian who survived lung cancer contains little original material, it is an extremely well organized and annotated set of links.
With Every Breath: A Lung Cancer Guidebook, this free online book was written by Dr. Tina M. St. John whose husband died of lung cancer a few years ago. It provides a detailed introduction to standard treatments for both small cell and non-small cell lung cancer.
Pancreatica is a non-commercial and unbiased site dedicated to providing the latest information on pancreatic cancer. One incredible feature is their pancreatic cancer clinical trials database which has many, many trials you won't find in other databases. [Reviewed Feb 02]
Information on Pancreatic Cancer at Johns Hopkins University Medical Center.
The Colon Cancer Alliance
The Colon Cancer Information Library by Medicine On Line
The Liver Cancer Network
This page by a doctor specializing in treating liver cancer covers treatments for both primary liver cancer and liver metastases.
Cathy's Esophageal Cancer Cafe
Bladder Cancer 'Web Cafe' An excellent patient created site.
The Melanoma Patient's Information Page has many unique tools, including staging tools, a "glossifier", and more. [Reviewed Feb 02]
Melanoma International Foundation provides information on melanoma and its prevention, detection, and treatment. [Reviewed Jan 07, PF]

Yttrium 90 Microspheres Education and Support provides information on treatment for liver cancer or metastases to the liver. When the liver is inoperable and there are few other choices, either Sir-Spheres or Theraspheres may be a possibility. The organization offers survivors a toll free survivor line, weekly telegroups, a monthly newsletter, list-serv support, and an informative web-site. [Reviewed July 07, PF]

Head and Neck Cancer

Head and neck cancer includes cancer of any part of the throat, layrnx, tonsil, sinus, tongue, lips, salivary glands, or other oral cavity, but does not include superficial skin cancers or brain tumors.

SPOHNC, Support for People with Oral, Head and Neck Cancer is strong in patient networking. Their web site doesn't have much information on it. I advise calling them. [Reviewed Dec 01]
Head and Neck Cancer Community is primarily a professional site. You'll find unvarnished technical information in the form of clinical practice guidelines. [Reviewed Dec 01]

Lymphomas, Leukemias, and Malignant Marrow or Blood Disorders

More Common Hematological Cancers

International Myeloma Foundation Home Page
Multiple Myeloma Research Foundation
The Lymphoma Information Network By Mike Barela a survivor of advanced Hodgkin's Disease.
Grannybarb and Art's Leukemia Links
Lymphomation.org
Created by a group of patients, this gem has much original information on Non-Hodgkin's Lymphoma.
CLLTopics
Covers Chronic Lymphocytic Leukemia and is one of the most amazing patient created sites I've ever seen.
Acute Myleogenous Leukemia Page by Medicine On Line

Rarer Hematological Cancers

International Waldenstrom's Macroglobulinemia Foundation
Myleoproliferative Disorders Page
Covers five rare blood diseases: Polycythemia Vera, Essential Thrombocythemia, Agnogenic Myeloid Metaplasia, Myelofibrosis, Myelodysplastic Syndrome, and Chronic Myelogenous Leukemia. Be sure to check their excellent FAQ files!
Aplastic Anemia & MDS International Foundation
Covers myeloproliferative disorders as well as aplastic anemia and one other hematological disorder. Information is available in several languages and they also have one-on-one support. Overall it looks like many of their best services are by phone so look over the site, then give 'em a call.
Mycosis Fungoides Foundation
This patient created site covers T-Cell Lymphomas including Mycosis Fungoides, Cutaneous T-Cell Lymphoma, and Sezary syndrome.
Primary Bone Non-Hodgkins Lymphoma - The Furry Monkey
This patient-authored web site covers all aspects of this rare type of lymphoma. [review 4/07 PF]

Rare Cancers Including Childhood Cancers

Pediatric Oncology Resource Center
Childhood Leukemia Page from Patient Centered Guides.
CureSearch (Children's Oncology Group public web site)
The Carcinoid Cancer Foundation
Caring for Carcinoid Foundation (CFCF)
The CFCF is a non-profit dedicated to providing a cure for carcinoid cancer. The web site provides quite a bit of information on disease and treatment issues, mostly in the form of links to other web sites. (Reviewed PF 1/07)
PMP Pals (rare intestinal cancers)
Covers Pseudomyxoma Peritonei, cancer of the appendix, carcinoid of the appendix or bowel, and other rare intestinal cancers. Information on the site is mostly links to other sites. Useful services include referral to expert doctors and introductions to patients with the same diagnosis but require a $50 membership contribution.
Leiomyosarcoma.info
An incredible and humane guide to this rare cancer by a group of patients.
The Life Raft Raft Group (GIST)
In addition to providing information on the latest research on Gastrointestinal Stromal Tumor (GIST), this incredible group is actually doing research which is changing the treatment of this rare cancer!
Mesothelioma Treatment Information by Roger G. Worthington, PC (A law firm)
Most mesothelioma is caused by asbestos and this site is put up by lawyers who make their living suing asbestos companies - obviously they might be interested in having you as a client. Despite any commercial motivation, the site has an impressive amount of well maintained treatment information on this relatively rare cancer and is a "must see" for anyone dealing with mesothielioma.
Adenoid Cystic Carcinoma Resource Cancer
Adenoid Cystic Carcinoma is a rare form of salivary gland cancer.
The Eye Cancer Network
Information on all types of eye cancer from a specialist in the field - a unique and wonderful feature is a list of eye cancer specialists
The Sarcoma Alliance. The Sarcoma Alliance is a volunteer organization of sarcoma survivors, their families, friends, and supporters. They work to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education and support. They also work to provide resources for the sarcoma patient's family and support network. Services are free of charge. Members of ACOR lists helped found this alliance. [PF review 2/09]

Links for Specific Problems Rather than Specific Cancers

Lymphedema is not a cancer, but can be a complication from cancer surgery. If you have it, check the National Lymphedema Network home page.
Cancer pain can usually be controlled but often isn't. For specific information on controlling cancer pain see cancer-pain.org

Didn't Find Your Cancer Here?

If your cancer is not listed here (or even if it is) you can gather valuable basic information your specific cancer and about cancer in general by taking CancerGuide's Tour of Essential Cancer Information Sites

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